Author(s):

  • Ning Zou

Abstract:

Individuals increasingly have access to and use a variety of self-tracking technologies in their daily lives, most notably to assist with personal health self-management. As important as self-tracking is for individuals, some argue it should be examined beyond self because it generates data streams and information that impact and are impacted by many others. The collaborative and data-intensive nature of using self-tracking technology for health management motivates this proposed work, which uses a theory-driven approach grounded in personal informatics and collaborative information behavior to empirically examine tracking practices in dementia care. I anticipate that the resulting collective personal informatics framework and design implications will be generalizable and applicable to a broader context of personal health management.

Documentation:

https://doi.org/10.1145/3498366.3505844

References:
  1. Claus Bossen, Kathleen H Pine, Federico Cabitza, Gunnar Ellingsen, and Enrico Maria Piras. 2019. Data work in healthcare: An Introduction. Health Informatics Journal 25, 3 (2019), 465–474. https://doi.org/10.1177/1460458219864730 arXiv:https://doi.org/10.1177/1460458219864730PMID: 31405353.
  2. Mayara Costa Figueiredo, Clara Caldeira, Tera L Reynolds, Sean Victory, Kai Zheng, and Yunan Chen. 2017. Self-tracking for fertility care: collaborative support for a highly personalized problem. Proceedings of the ACM on Human-Computer Interaction 1, CSCW(2017), 1–21.
  3. Paul Dourish and Genevieve Bell. 2011. Divining a digital future: Mess and mythology in ubiquitous computing. Mit Press.
  4. Elizabeth V Eikey and Madhu C Reddy. 2017. ” It’s Definitely Been a Journey” A Qualitative Study on How Women with Eating Disorders Use Weight Loss Apps. In Proceedings of the 2017 CHI conference on human factors in computing systems. 642–654.
  5. Daniel A Epstein, Clara Caldeira, Mayara Costa Figueiredo, Xi Lu, Lucas M Silva, Lucretia Williams, Jong Ho Lee, Qingyang Li, Simran Ahuja, Qiuer Chen, 2020. Mapping and Taking Stock of the Personal Informatics Literature. Proceedings of the ACM on Interactive, Mobile, Wearable and Ubiquitous Technologies 4, 4 (2020), 1–38.
  6. Daniel A Epstein, Bradley H Jacobson, Elizabeth Bales, David W McDonald, and Sean A Munson. 2015. From” nobody cares” to” way to go!” A Design Framework for Social Sharing in Personal Informatics. In Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing. 1622–1636.
  7. Susannah Fox and Maeve Duggan. 2013. Tracking for health. Pew Research Center’s Internet & American Life Project.
  8. Matthew K Hong, Lauren Wilcox, Daniel Machado, Thomas A Olson, and Stephen F Simoneaux. 2016. Care partnerships: Toward technology to support teens’ participation in their health care. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems. 5337–5349.
  9. Amy S Hwang, Piper Jackson, Andrew Sixsmith, Louise Nygård, Arlene Astell, Khai N Truong, and Alex Mihailidis. 2020. Exploring how persons with dementia and care partners collaboratively appropriate information and communication technologies. ACM Transactions on Computer-Human Interaction (TOCHI) 27, 6(2020), 1–38.
  10. William Jones. 2007. Personal information management. Annual review of information science and technology 41, 1(2007), 453–504.
  11. Dmitri S Katz, Blaine A Price, Simon Holland, and Nicholas Sheep Dalton. 2018. Data, data everywhere, and still too hard to link: Insights from user interactions with diabetes apps. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems. 1–12.
  12. Ian Li, Anind Dey, and Jodi Forlizzi. 2010. A stage-based model of personal informatics systems. In Proceedings of the SIGCHI conference on human factors in computing systems. 557–566.
  13. Deborah Lupton. 2016. You are your data: Self-tracking practices and concepts of data. In Lifelogging. Springer, 61–79.
  14. Sonali R Mishra, Predrag Klasnja, John MacDuffie Woodburn, Eric B Hekler, Larsson Omberg, Michael Kellen, and Lara Mangravite. 2019. Supporting coping with parkinson’s disease through self tracking. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems. 1–16.
  15. Sonali R Mishra, Andrew D Miller, Shefali Haldar, Maher Khelifi, Jordan Eschler, Rashmi G Elera, Ari H Pollack, and Wanda Pratt. 2018. Supporting collaborative health tracking in the hospital: patients’ perspectives. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems. 1–14.
  16. Elizabeth L Murnane, Tara G Walker, Beck Tench, Stephen Voida, and Jaime Snyder. 2018. Personal informatics in interpersonal contexts: towards the design of technology that supports the social ecologies of long-term mental health management. Proceedings of the ACM on Human-Computer Interaction 2, CSCW(2018), 1–27.
  17. United Nations. 2019. World Population Ageing 2019 Highlights. United Nations. https://www.un-ilibrary.org/content/books/9789210045537
  18. Gina Neff and Dawn Nafus. 2016. Self-tracking. MIT Press.
  19. Francisco Nunes and Geraldine Fitzpatrick. 2015. Self-care technologies and collaboration. International Journal of Human-Computer Interaction 31, 12(2015), 869–881.
  20. Sharoda A Paul and Madhu C Reddy. 2010. Understanding together: sensemaking in collaborative information seeking. In Proceedings of the 2010 ACM conference on Computer supported cooperative work. 321–330.
  21. Alison Jane Pickard. 2013. Research methods in information. Facet publishing.
  22. Laura R Pina, Sang-Wha Sien, Teresa Ward, Jason C Yip, Sean A Munson, James Fogarty, and Julie A Kientz. 2017. From personal informatics to family informatics: Understanding family practices around health monitoring. In Proceedings of the 2017 acm conference on computer supported cooperative work and social computing. 2300–2315.
  23. Sarah Pink, Heather Horst, John Postill, Larissa Hjorth, Tania Lewis, and Jo Tacchi. 2015. Digital ethnography: Principles and practice. Sage.
  24. Anne Marie Piper, Raymundo Cornejo, Lisa Hurwitz, and Caitlin Unumb. 2016. Technological caregiving: Supporting online activity for adults with cognitive impairments. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems. 5311–5323.
  25. Madhu C Reddy and Bernard J Jansen. 2008. A model for understanding collaborative information behavior in context: A study of two healthcare teams. Information Processing & Management 44, 1 (2008), 256–273.
  26. John Rooksby, Mattias Rost, Alistair Morrison, and Matthew Chalmers. 2014. Personal tracking as lived informatics. In Proceedings of the SIGCHI conference on human factors in computing systems. 1163–1172.
  27. Chirag Shah. 2014. Collaborative information seeking. Journal of the Association for Information Science and Technology 65, 2(2014), 215–236.
  28. Seokwoo Song, Juho Kim, Bumsoo Kang, Wonjeong Park, and John Kim. 2018. BebeCODE: Collaborative Child Development Tracking System. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems. 1–12.
  29. Donna Spencer. 2009. Card sorting: Designing usable categories. Rosenfeld Media.
  30. Lisa M Vizer, Jordan Eschler, Bon Mi Koo, James Ralston, Wanda Pratt, and Sean Munson. 2019. “It’s Not Just Technology, It’s People”: Constructing a Conceptual Model of Shared Health Informatics for Tracking in Chronic Illness Management. Journal of medical Internet research 21, 4 (2019), e10830.
The SELF Institute