Author(s):

  • Aqueasha Martin-Hammond
  • Tanjala S. Purnell

Abstract:

A healthy diet and increased physical activity are essential for reducing the prevalence of cardiovascular disease and related deaths, a worldwide public health concern that disproportionately affects Black American communities. Still, Black Americans can face unique challenges meeting dietary and physical activity requirements due to inequities in access and quality of care, environmental and local factors, and difficulties in changing individual health behaviors. Personal informatics and self-tracking tools are one way of increasing awareness of health behaviors to motivate behavior change. However, there are still gaps in knowledge about what encourages different users to engage with personal informatics tools over time, particularly when used in collaborative, community-health settings. This paper contributes a nuanced understanding of fifteen participants’ reasons for engaging in an existing community-based health education and behavior change program that combines collaborative self-tracking with culturally relevant content and social engagement to motivate heart-healthy behaviors. We illustrate participants’ positive and negative experiences engaging in self-tracking and collaborative tasks during the program. We also discuss how participants envision that integrating technology might support or hinder participant engagement and the work of deploying community-based public health interventions. Finally, we discuss design implications for culturally informed, community-based personal informatics tools that engage Black American’s in heart-healthy activities.

Documentation:

https://doi.org/10.1145/3492848

References:
  1. Eric P S Baumer and M Six Silberman. 2011. When the implication is not to design (technology). In Proceedings of the 2011 annual conference on Human factors in computing systems – CHI ’11 (Vancouver, BC, Canada). ACM Press, New York, New York, USA.
  2. Natalie C Benda, Enid Montague, and Rupa S Valdez. 2020. Design for inclusivity. In Design for Health. Elsevier, 305–322.
  3. Clara Caldeira and Yunan Chen. 2019. Seniors and Self-tracking Technology. In Perspectives on Human-Computer Interaction Research with Older People, Sergio Sayago (Ed.). Springer International Publishing, Cham, 67–79.
  4. Mercedes R Carnethon, Jia Pu, George Howard, Michelle A Albert, Cheryl A M Anderson, Alain G Bertoni, Mahasin S Mujahid, Latha Palaniappan, Herman A Taylor, Jr, Monte Willis, Clyde W Yancy, and American Heart Association Council on Epidemiology and Prevention; Council on Cardiovascular Disease in the Young; Council on Cardiovascular and Stroke Nursing; Council on Clinical Cardiology; Council on Functional Genomics and Translational Biology; and Stroke Council. 2017. Cardiovascular Health in African Americans: A Scientific Statement From the American Heart Association. Circulation 136, 21 (Nov. 2017), e393–e423.
  5. CDC. 2020. African American Health. https://www.cdc.gov/vitalsigns/aahealth/index.html. Accessed: 2021–5–20.
  6. Frank Chen, Eric Hekler, Jinhui Hu, Shen Li, and Candy Zhao. 2011. Designing for context-aware health selfmonitoring, feedback, and engagement. In Proceedings of the ACM 2011 conference on Computer supported cooperative work (Hangzhou, China) (CSCW ’11). Association for Computing Machinery, New York, NY, USA, 613–616.
  7. Eun Kyoung Choe, Bongshin Lee, Matthew Kay, Wanda Pratt, and Julie A Kientz. 2015. SleepTight: low-burden, selfmonitoring technology for capturing and reflecting on sleep behaviors. In Proceedings of the 2015 ACM International Joint Conference on Pervasive and Ubiquitous Computing (Osaka, Japan) (UbiComp ’15). Association for Computing Machinery, New York, NY, USA, 121–132.
  8. Eun Kyoung Choe, Bongshin Lee, Haining Zhu, Nathalie Henry Riche, and Dominikus Baur. 2017. Understanding self-reflection: how people reflect on personal data through visual data exploration. In Proceedings of the 11th EAI International Conference on Pervasive Computing Technologies for Healthcare (Barcelona, Spain) (PervasiveHealth ’17). Association for Computing Machinery, New York, NY, USA, 173–182.
  9. Chia-Fang Chung, Elena Agapie, Jessica Schroeder, Sonali Mishra, James Fogarty, and Sean A Munson. 2017. When Personal Tracking Becomes Social: Examining the Use of Instagram for Healthy Eating. In Proceedings of the 2017 CHI Proc. ACM Hum.-Comput. Interact., Vol. 6, No. GROUP, Article 29. Publication date: January 2022. 29:20 Aqueasha Martin-Hammond & Tanjala S. Purnell Conference on Human Factors in Computing Systems (Denver, Colorado, USA) (CHI ’17). Association for Computing Machinery, New York, NY, USA, 1674–1687.
  10. James Clawson, Jessica A Pater, Andrew D Miller, Elizabeth D Mynatt, and Lena Mamykina. 2015. No Longer Wearing: Investigating the Abandonment of Personal Health-tracking Technologies on Craigslist. In Proceedings of the 2015 ACM International Joint Conference on Pervasive and Ubiquitous Computing (UbiComp ’15). ACM, New York, NY, USA, 647–658.
  11. Sunny Consolvo, Predrag Klasnja, David W McDonald, and James A Landay. 2009. Goal-setting considerations for persuasive technologies that encourage physical activity. In Proceedings of the 4th International Conference on Persuasive Technology (Claremont, California, USA) (Persuasive ’09, Article 8). Association for Computing Machinery, New York, NY, USA, 1–8.
  12. Sunny Consolvo, David W McDonald, Tammy Toscos, Mike Y Chen, Jon Froehlich, Beverly Harrison, Predrag Klasnja, Anthony LaMarca, Louis LeGrand, Ryan Libby, Ian Smith, and James A Landay. 2008. Activity sensing in the wild: a field trial of ubifit garden. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (Florence, Italy) (CHI ’08). Association for Computing Machinery, New York, NY, USA, 1797–1806.
  13. Lisa A Cooper, Tanjala S Purnell, Chidinma A Ibe, Jennifer P Halbert, Lee R Bone, Kathryn A Carson, Debra Hickman, Michelle Simmons, Ann Vachon, Inez Robb, Michelle Martin-Daniels, Katherine B Dietz, Sherita Hill Golden, Deidra C Crews, Felicia Hill-Briggs, Jill A Marsteller, L Ebony Boulware, Edgar R Iii Miller, and David M Levine. [n. d.]. Reaching for Health Equity and Social Justice in Baltimore: The Evolution of an Academic-Community Partnership and Conceptual Framework to Address Hypertension Disparities. Ethn. Dis. 26, 3 ([n. d.]), 369–378.
  14. John W Creswell and Cheryl N Poth. 2016. Qualitative Inquiry and Research Design: Choosing Among Five Approaches. SAGE Publications.
  15. Elisabeth T Kersten-van Dijk, Joyce H D M Westerink, Femke Beute, and Wijnand A IJsselsteijn. 2017. Personal Informatics, Self-Insight, and Behavior Change: A Critical Review of Current Literature. Human–Computer Interaction 32, 5–6 (Nov. 2017), 268–296.
  16. Chris Elsden and David S Kirk. 2014. A quantified past: remembering with personal informatics. In Proceedings of the 2014 companion publication on Designing interactive systems (Vancouver, BC, Canada) (DIS Companion ’14). Association for Computing Machinery, New York, NY, USA, 45–48.
  17. Gahizi Emmanuel, Gilbert Gutabaga Hungilo, and Andi Wahju Rahardjo Emanuel. 2019. A Mobile Application System for Community Health Workers-A Review. In Proceedings of the 2019 5th International Conference on Computing and Artificial Intelligence (Bali, Indonesia) (ICCAI ’19). Association for Computing Machinery, New York, NY, USA, 106–110.
  18. Daniel Epstein, Felicia Cordeiro, Elizabeth Bales, James Fogarty, and Sean Munson. 2014. Taming data complexity in lifelogs. In Proceedings of the 2014 conference on Designing interactive systems (Vancouver BC Canada). ACM, New York, NY, USA.
  19. Daniel A Epstein, Monica Caraway, Chuck Johnston, An Ping, James Fogarty, and Sean A Munson. 2016. Beyond Abandonment to Next Steps: Understanding and Designing for Life After Personal Informatics Tool Use. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems (CHI ’16). ACM, New York, NY, USA, 1109–1113.
  20. Daniel A Epstein, Bradley H Jacobson, Elizabeth Bales, David W McDonald, and Sean A Munson. 2015. From “nobody cares” to “way to go!”: A Design Framework for Social Sharing in Personal Informatics. In Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing (CSCW ’15). Association for Computing Machinery, Vancouver, BC, Canada, 1622–1636.
  21. Daniel A Epstein, Nicole B Lee, Jennifer H Kang, Elena Agapie, Jessica Schroeder, Laura R Pina, James Fogarty, Julie A Kientz, and Sean Munson. 2017. Examining Menstrual Tracking to Inform the Design of Personal Informatics Tools. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems (CHI ’17). Association for Computing Machinery, Denver, Colorado, USA, 6876–6888.
  22. Daniel A Epstein, An Ping, James Fogarty, and Sean A Munson. 2015. A Lived Informatics Model of Personal Informatics. In Proceedings of the 2015 ACM International Joint Conference on Pervasive and Ubiquitous Computing (UbiComp ’15). ACM, New York, NY, USA, 731–742.
  23. Clayton Feustel, Shyamak Aggarwal, Bongshin Lee, and Lauren Wilcox. 2018. People Like Me: Designing for Reflection on Aggregate Cohort Data in Personal Informatics Systems. Proc. ACM Interact. Mob. Wearable Ubiquitous Technol. 2, 3 (Sept. 2018), 1–21.
  24. Sherita Hill Golden, Tanjala Purnell, Jennifer P Halbert, Richard Matens, Edgar R “pete” Miller, David M Levine, Tam H Nguyen, Kimberly A Gudzune, Deidra C Crews, Mankekolo Mahlangu-Ngcobo, and Lisa A Cooper. 2014. A CommunityEngaged Cardiovascular Health Disparities Research Training Curriculum: Implementation and Preliminary Outcomes. Acad. Med. 89, 10 (Oct. 2014), 1348–1356.
  25. Andrea Grimes, Martin Bednar, Jay David Bolter, and Rebecca E Grinter. 2008. EatWell. In Proceedings of the ACM 2008 conference on Computer supported cooperative work – CSCW ’08 (San Diego, CA, USA). ACM Press, New York, New York, USA. Proc. ACM Hum.-Comput. Interact., Vol. 6, No. GROUP, Article 29. Publication date: January 2022. Bridging Community, History, and Culture in Personal Informatics Tools: Insights from an Existing Community-Based Heart Health Intervention for Black Americans 29:21
  26. Danielle Groat, Hiral Soni, Maria Adela Grando, Bithika Thompson, David Kaufman, and Curtiss B Cook. 2018. Design and Testing of a Smartphone Application for Real-Time Self-Tracking Diabetes Self-Management Behaviors. Appl. Clin. Inform. 9, 2 (2018), 440–449.
  27. Rebecca Gulotta, Jodi Forlizzi, Rayoung Yang, and Mark Wah Newman. 2016. Fostering Engagement with Personal Informatics Systems. In Proceedings of the 2016 ACM Conference on Designing Interactive Systems (DIS ’16). Association for Computing Machinery, Brisbane, QLD, Australia, 286–300.
  28. Christina N Harrington and Anne Marie Piper. 2018. Informing Design through Sociocultural Values: Co-Creation with Low-Income African-American Older Adults. In Proceedings of the 12th EAI International Conference on Pervasive Computing Technologies for Healthcare (New York, NY, USA) (PervasiveHealth ’18). Association for Computing Machinery, New York, NY, USA, 294–298.
  29. Christina N Harrington, Lauren Wilcox, Kay Connelly, Wendy Rogers, and Jon Sanford. 2018. Designing Health and Fitness Apps with Older Adults: Examining the Value of Experience-Based Co-Design. In Proceedings of the 12th EAI International Conference on Pervasive Computing Technologies for Healthcare (New York, NY, USA) (PervasiveHealth ’18). Association for Computing Machinery, New York, NY, USA, 15–24.
  30. Azra Ismail and Neha Kumar. 2019. Empowerment on the Margins: The Online Experiences of Community Health Workers. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems (Glasgow, Scotland Uk) (CHI ’19, Paper 99). Association for Computing Machinery, New York, NY, USA, 1–15.
  31. Barbara A Israel, Amy J Schulz, Edith A Parker, and Adam B Becker. 1998. REVIEW OF COMMUNITY-BASED RESEARCH: Assessing Partnership Approaches to Improve Public Health. Annu. Rev. Public Health 19, 1 (1998), 173–202.
  32. Nalita James. 2016. Using email interviews in qualitative educational research: creating space to think and time to talk. Int. J. Qual. Stud. Educ. 29, 2 (Feb. 2016), 150–163.
  33. Noreen Kamal, Sidney Fels, and Kendall Ho. 2010. Online social networks for personal informatics to promote positive health behavior. In Proceedings of second ACM SIGMM workshop on Social media (Firenze, Italy) (WSM ’10). Association for Computing Machinery, New York, NY, USA, 47–52.
  34. Christina Kelley, Bongshin Lee, and Lauren Wilcox. 2017. Self-tracking for Mental Wellness: Understanding Expert Perspectives and Student Experiences. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems (Denver, Colorado, USA) (CHI ’17). Association for Computing Machinery, New York, NY, USA, 629–641.
  35. Young-Ho Kim, Jae Ho Jeon, Bongshin Lee, Eun Kyoung Choe, and Jinwook Seo. 2017. OmniTrack: A Flexible SelfTracking Approach Leveraging Semi-Automated Tracking. Proc. ACM Interact. Mob. Wearable Ubiquitous Technol. 1, 3 (Sept. 2017), 67:1–67:28.
  36. Predrag Klasnja, Sunny Consolvo, and Wanda Pratt. 2011. How to evaluate technologies for health behavior change in HCI research. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (Vancouver, BC, Canada) (CHI ’11). Association for Computing Machinery, New York, NY, USA, 3063–3072.
  37. Thea J M Kooiman, Martijn de Groot, Klaas Hoogenberg, Wim P Krijnen, Cees P van der Schans, and Adriaan Kooy. 2018. Self-tracking of Physical Activity in People With Type 2 Diabetes: A Randomized Controlled Trial. Comput. Inform. Nurs. 36, 7 (July 2018), 340–349.
  38. Ian Li, Anind Dey, and Jodi Forlizzi. 2010. A Stage-based Model of Personal Informatics Systems. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI ’10). ACM, New York, NY, USA, 557–566.
  39. Ian Li, Anind K Dey, and Jodi Forlizzi. 2011. Understanding My Data, Myself: Supporting Self-reflection with Ubicomp Technologies. In Proceedings of the 13th International Conference on Ubiquitous Computing (UbiComp ’11). ACM, New York, NY, USA, 405–414.
  40. Yuhan Luo, Peiyi Liu, and Eun Kyoung Choe. 2019. Co-Designing Food Trackers with Dietitians: Identifying Design Opportunities for Food Tracker Customization. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems (CHI ’19). Association for Computing Machinery, Glasgow, Scotland Uk, 1–13.
  41. Deborah Lupton. 2014. Self-tracking cultures: towards a sociology of personal informatics. In Proceedings of the 26th Australian Computer-Human Interaction Conference on Designing Futures: the Future of Design (OzCHI ’14). Association for Computing Machinery, Sydney, New South Wales, Australia, 77–86.
  42. Haley MacLeod, Anthony Tang, and Sheelagh Carpendale. 2013. Personal informatics in chronic illness management. In Proceedings of Graphics Interface 2013 (GI ’13). Canadian Information Processing Society, Regina, Sascatchewan, Canada, 149–156.
  43. Sanjana Mendu, Mehdi Boukhechba, Janna R Gordon, Debajyoti Datta, Edwin Molina, Gloria Arroyo, Sara K Proctor, Kristen J Wells, and Laura E Barnes. 2018. Design of a Culturally-Informed Virtual Human for Educating Hispanic Women about Cervical Cancer. In Proceedings of the 12th EAI International Conference on Pervasive Computing Technologies for Healthcare (New York, NY, USA) (PervasiveHealth ’18). Association for Computing Machinery, New York, NY, USA, 360–366. Proc. ACM Hum.-Comput. Interact., Vol. 6, No. GROUP, Article 29. Publication date: January 2022. 29:22 Aqueasha Martin-Hammond & Tanjala S. Purnell
  44. Kathryn Mercer, Lora Giangregorio, Eric Schneider, Parmit Chilana, Melissa Li, and Kelly Grindrod. 2016. Acceptance of Commercially Available Wearable Activity Trackers Among Adults Aged Over 50 and With Chronic Illness: A Mixed-Methods Evaluation. JMIR Mhealth Uhealth 4, 1 (Jan. 2016), e7.
  45. Cheryl Merzel and Joanna D’Afflitti. 2003. Reconsidering community-based health promotion: promise, performance, and potential. Am. J. Public Health 93, 4 (April 2003), 557–574.
  46. Sonali R Mishra, Predrag Klasnja, John MacDuffie Woodburn, Eric B Hekler, Larsson Omberg, Michael Kellen, and Lara Mangravite. 2019. Supporting Coping with Parkinson’s Disease Through Self Tracking. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems (CHI ’19). ACM, New York, NY, USA, 107:1–107:16.
  47. Maletsabisa Molapo, Melissa Densmore, and Limpho Morie. 2016. Designing with Community Health Workers: Enabling Productive Participation Through Exploration. In Proceedings of the First African Conference on Human Computer Interaction (Nairobi, Kenya) (AfriCHI’16). Association for Computing Machinery, New York, NY, USA, 58–68.
  48. Enid Montague and Jennifer Perchonok. 2012. Health and wellness technology use by historically underserved health consumers: systematic review. J. Med. Internet Res. 14, 3 (May 2012), e78.
  49. Enid Montague, Woodrow Winchester, Rupa Valdez, Monifa Vaughn-Cooke, and Jennifer Perchonok. 2013. Considering Culture in the Design and Evaluation of Health IT for Patients. Proc. Hum. Fact. Ergon. Soc. Annu. Meet. 57, 1 (Sept. 2013), 1088–1092.
  50. Jeffrey D Morenoff, James S House, Ben B Hansen, David R Williams, George A Kaplan, and Haslyn E Hunte. 2007. Understanding social disparities in hypertension prevalence, awareness, treatment, and control: the role of neighborhood context. Soc. Sci. Med. 65, 9 (Nov. 2007), 1853–1866.
  51. Elizabeth L Murnane, Tara G Walker, Beck Tench, Stephen Voida, and Jaime Snyder. 2018. Personal Informatics in Interpersonal Contexts: Towards the Design of Technology that Supports the Social Ecologies of Long-Term Mental Health Management. Proc. ACM Hum.-Comput. Interact. 2, CSCW (Nov. 2018), 1–27.
  52. Teresa K O’Leary, Elizabeth Stowell, Everlyne Kimani, Dhaval Parmar, Stefan Olafsson, Jessica Hoffman, Andrea G Parker, Michael K Paasche-Orlow, and Timothy Bickmore. 2020. Community-Based Cultural Tailoring of Virtual Agents. In Proceedings of the 20th ACM International Conference on Intelligent Virtual Agents (Virtual Event, Scotland, UK) (IVA ’20, Article 43). Association for Computing Machinery, New York, NY, USA, 1–8.
  53. Andrea G Parker and Rebecca E Grinter. 2014. Collectivistic health promotion tools: Accounting for the relationship between culture, food and nutrition. Int. J. Hum. Comput. Stud. 72, 2 (Feb. 2014), 185–206.
  54. Jennifer Perchonok and Enid Montague. 2012. The Need to Examine Culture in Health Technology. Proc. Hum. Fact. Ergon. Soc. Annu. Meet. 56, 1 (Sept. 2012), 1847–1851.
  55. Marcus Plescia, Harry Herrick, and Latonya Chavis. 2008. Improving health behaviors in an African American community: the Charlotte Racial and Ethnic Approaches to Community Health project. Am. J. Public Health 98, 9 (Sept. 2008), 1678–1684.
  56. Jeannette Pols, Dick Willems, and Margunn Aanestad. 2019. Making sense with numbers. Unravelling ethicopsychological subjects in practices of self-quantification. Sociol. Health Illn. 41 Suppl 1 (2019), 98–115.
  57. Kimberly C Preusse, Tracy L Mitzner, Cara Bailey Fausset, and Wendy A Rogers. 2017. Older Adults’ Acceptance of Activity Trackers. J. Appl. Gerontol. 36, 2 (Feb. 2017), 127–155.
  58. Tanjala S Purnell, Elizabeth A Calhoun, Sherita H Golden, Jacqueline R Halladay, Jessica L Krok-Schoen, Bradley M Appelhans, and Lisa A Cooper. 2016. Achieving Health Equity: Closing The Gaps In Health Care Disparities, Interventions, And Research. Health Aff. 35, 8 (Aug. 2016), 1410–1415.
  59. Tanjala S Purnell, Ina Glenn-Smith, Sunjae Bae, Grecia Vargas, Anika L Hines, and Jeanne Charleston. 2020. Abstract 09: The Health Freedom Path to Wellness Program: A Novel Educational and Behavioral Intervention to Promote Cardiovascular Health Equity. Circulation 141, Suppl_1 (March 2020), A09–A09.
  60. Aare Puussaar, Adrian K Clear, and Peter Wright. 2017. Enhancing Personal Informatics Through Social Sensemaking. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems (CHI ’17). Association for Computing Machinery, Denver, Colorado, USA, 6936–6942.
  61. Amon Rapp and Federica Cena. 2016. Personal informatics for everyday life: How users without prior self-tracking experience engage with personal data. Int. J. Hum. Comput. Stud. 94 (Oct. 2016), 1–17.
  62. Peter Rasche, Matthias Wille, Sabine Theis, Katharina Schäfer, Christopher M Schlick, and Alexander Mertens. 2016. Self monitoring — an age-related comparison. http://publications.rwth-aachen.de/record/661636/files/SV5348-IAW.pdf. Accessed: 2021–8–6.
  63. John Rooksby, Mattias Rost, Alistair Morrison, and Matthew Chalmers. 2014. Personal Tracking As Lived Informatics. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI ’14). ACM, New York, NY, USA, 1163–1172.
  64. Herman Saksono, Carmen Castaneda-Sceppa, Jessica Hoffman, Vivien Morris, Magy Seif El-Nasr, and Andrea G Parker. 2020. Storywell: Designing for Family Fitness App Motivation by Using Social Rewards and Reflection. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (Honolulu, HI, USA) (CHI ’20). Association for Proc. ACM Hum.-Comput. Interact., Vol. 6, No. GROUP, Article 29. Publication date: January 2022. Bridging Community, History, and Culture in Personal Informatics Tools: Insights from an Existing Community-Based Heart Health Intervention for Black Americans 29:23 Computing Machinery, New York, NY, USA, 1–13.
  65. Herman Saksono, Carmen Castaneda-Sceppa, Jessica Hoffman, Magy Seif El-Nasr, Vivien Morris, and Andrea G Parker. 2018. Family Health Promotion in Low-SES Neighborhoods: A Two-Month Study of Wearable Activity Tracking. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems (Montreal QC, Canada) (CHI ’18, Paper 309). Association for Computing Machinery, New York, NY, USA, 1–13.
  66. Herman Saksono, Carmen Castaneda-Sceppa, Jessica A Hoffman, Magy Seif El-Nasr, and Andrea Parker. 2021. StoryMap: Using Social Modeling and Self-Modeling to Support Physical Activity Among Families of Low-SES Backgrounds. In Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems (Yokohama, Japan) (CHI ’21, Article 203). Association for Computing Machinery, New York, NY, USA, 1–14.
  67. Jamie Sanders, Tanjala S Purnell, Jeanne Charleston, Ina Glenn-Smith, and Aqueasha Martin-Hammond. 2020. A Circle of Friends: Persuasive Tools to Improve Heart Health. In Companion of the 2020 ACM International Conference on Supporting Group Work (GROUP ’20). Association for Computing Machinery, Sanibel Island, Florida, USA, 107–110.
  68. Darcell P Scharff, Katherine J Mathews, Pamela Jackson, Jonathan Hoffsuemmer, Emeobong Martin, and Dorothy Edwards. 2010. More than Tuskegee: understanding mistrust about research participation. J. Health Care Poor Underserved 21, 3 (Aug. 2010), 879–897.
  69. Anna Schlomann, Katja von Storch, Peter Rasche, and Christian Rietz. 2016. Means of Motivation or of Stress? The Use of Fitness Trackers for Self-Monitoring by Older Adults. HeilberufeScience 7, 3 (Aug. 2016), 111–116.
  70. C T Sempos, D E Bild, and T A Manolio. 1999. Overview of the Jackson Heart Study: a study of cardiovascular diseases in African American men and women. Am. J. Med. Sci. 317, 3 (March 1999), 142–146.
  71. Fadia T Shaya, Anna Gu, and Elijah Saunders. 2006. Addressing cardiovascular disparities through community interventions. Ethn. Dis. 16, 1 (2006), 138–144.
  72. Wally Smith, Greg Wadley, Oliver Daly, Marianne Webb, Jo Hughson, John Hajek, Anna Parker, Robyn Woodward-Kron, and David Story. 2017. Designing an app for pregnancy care for a culturally and linguistically diverse community. In Proceedings of the 29th Australian Conference on Computer-Human Interaction (Brisbane, Queensland, Australia) (OZCHI ’17). Association for Computing Machinery, New York, NY, USA, 337–346.
  73. Deborah Tatar. 2007. The Design Tensions Framework. Human–Computer Interaction 22, 4 (Nov. 2007), 413–451.
  74. Herman A Taylor, Jr, James G Wilson, Daniel W Jones, Daniel F Sarpong, Asoka Srinivasan, Robert J Garrison, Cheryl Nelson, and Sharon B Wyatt. 2005. Toward resolution of cardiovascular health disparities in African Americans: design and methods of the Jackson Heart Study. Ethn. Dis. 15, 4 Suppl 6 (2005), S6–4–17.
  75. Dimitri Vargemidis, Kathrin Gerling, Katta Spiel, Vero Vanden Abeele, and Luc Geurts. 2020. Wearable Physical Activity Tracking Systems for Older Adults-A Systematic Review. ACM Trans. Comput. Healthcare 1, 4 (Sept. 2020), 25:1–25:37.
  76. Morgan Vigil-Hayes, Ann Futterman Collier, Shelby Hagemann, Giovanni Castillo, Keller Mikkelson, Joshua Dingman, Andrew Muñoz, Jade Luther, and Alexandra McLaughlin. 2021. Integrating Cultural Relevance into a Behavioral mHealth Intervention for Native American Youth. Proc. ACM Hum.-Comput. Interact. 5, CSCW1 (April 2021), 1–29.
  77. Lisa M Vizer, Jordan Eschler, Bon Mi Koo, James Ralston, Wanda Pratt, and Sean Munson. 2019. “It’s Not Just Technology, It’s People”: Constructing a Conceptual Model of Shared Health Informatics for Tracking in Chronic Illness Management. J. Med. Internet Res. 21, 4 (April 2019), e10830.
The SELF Institute